Important information

Important information

I got these images from the “Life after the semicolon” page on Facebook. It is a good resource for those of us who deal with depression, suicide, or any mental illness really. Check it out. I recommend keeping these images on your phone or tablet so they are handy for you to do a quick self-check from time to time.

Here is another one. Kinda similar to the first but not exactly the same.

Hang in there beautiful people. Remember you can always reach me by dm or by email. I am here if you need to talk to someone but I am not a medical professional. Do your best and reach out for help if you need it. You got this!!!

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The To Do List That Never Gets Done

The To Do List That Never Gets Done

It seems like I have a never ending To Do list. Just when I manage to cross off one or two items I add on three or four more. Most of the time these are calls to Doctor’s offices or errands to be run. Sometimes there are chores I need to accomplish around the house. A project I really want to put the finishing touches on. Something one of the kids needs for school.

IMG_2582 (1)The problem is that I hate my To Do list. It sits there and mocks me. It criticizes me. It tells me how I don’t measure up to what I should be. It tells me I am lazy or unmotivated. It tells me I am slow. It tells me I am not good enough. It’s not very kind, this To Do list. It’s not very forgiving either. It expects me to get it all done in one day. It doesn’t see why it should linger there for days or weeks even. It doesn’t see the need to be added to and rewritten. It doesn’t see why it should be shuffled from here to there and sometimes told how much it is hated.

You see I have chronic illnesses. I have fibromyalgia which has fatigue as a major symptom and I also have narcolepsy which….well, narcolepsy… my body wants to sleep all the time. Add on top of these my chronic depression and you have a mixture that is ripe for To Do list hatred. Most days I have little to no energy or motivation. When I do happen to have the right mixture to get something accomplished it is usually short lived. This is very frustrating and demoralizing. Which, as it happens, is the prime cause of To Do list hatred.

What do you do about To Do list hatred? Well, there is only one cure that I have heard of and it is very difficult to achieve. Very few people can actually achieve it permanently. Most usually suffer setbacks at some point. What’s the secret? you ask. It’s not really a secret. The cure for To Do list hatred is forgiveness and acceptance. Forgive yourself for not getting it done. Accept that you are doing what you can and it will get done when you are able. See? Easier said than done huh? But it is true.

Those of us with chronic illnesses have a limited energy reserve and our body needs it to heal itself. We need to conserve every bit of energy that we can by resting whenever possible while remaining active to the point of not overdoing it. It is  a delicate balancing act that few can achieve perfectly. Especially in the beginning. Stress should be avoided. Especially stress from judgmental To Do lists. 😉

 

Torture Tuesday (My day of Pampering)

Torture Tuesday (My day of Pampering)

**Disclaimer: None of these pictures are of me or anyone I know. They are random pretty people off the interweb I found in a Google search for images.**

Guys, I try to be understanding, you know? I try to remember that no one knows the hell we go through in our bodies but us and that it is pretty near to impossible to imagine, but, holy heck, sometimes I get so tired of being the understanding one. You know?

So here is what happened….. My best friend and I are getting ready to take a 9 hour road trip with 4 teenagers (2 boys, 2 girls) to go to the beach for a week. Now my friend will do most of the driving and the girls are going to drive their own car so we won’t all be jammed in one car. Whew! That’s a relief. I am however really worried about being able to make it through this vacay still on my feet. This is my first one of this length since I got sick. Last year we went to Hilton Head for 3 days and it kicked my butt. Anyway…. I was trying to get all my “stuff” done early this week so I could rest Wed., Thurs., and Fri., then packing up with help on Sat. I ran errands Mon. morning then came home around noon and napped the rest of the day. That left me with a ton of stuff to do yesterday!

So…. first, I needed to visit some thrift stores to look for a push wheel chair or transfer chair. I need a way to make the 300 yard trek from the hotel to the boardwalk to conserve my energy and  protect my back because walking makes it hurt. Then I was A shopping cart full with groceriesgoing to get my eyebrows waxed because EEEk!, grab a couple groceries at WalMart that only come from there,  get a pedicure because again EEEk!, pick up a prescription, get a massage/myofascial therapy to help with back pain, and go to Super Target for sunscreen, groceries that only come from there, check for clearance sand toys, stuff like that. Whew!!!! That is a lot for a girl who is only out of bed for an hour or so at a time!! So I decided to cut the thrift stores out. I had already visited a ton with no luck and Walgreens had one on sale $50 off and I had $20 reward to use, so it wasn’t too bad. Then I bumped into my Mom at the Hair salon and begged her to get the Walmart groceries for me while she was there. Grocery shopping is the worst on my back so I was very grateful to her for doing that for me. Ha! Three things off my list.

Now, waxing. As you can imagine, that is pure torture with my sensitive nerves. Fibromyalgia makes your nerves about a hundred times more sensitive than the average fdgaswfdascdascaspersons at least. Sometimes we are hypersensitive and it is even worse. Today it was bearable but barely. The stylist always laughs at the faces that I make when she pulls the strips off. I also make little screams. I apparently scared a teenager out of trying waxing yesterday. Sorry honey.  It isn’t that bad really. Only lasts a minute and much quicker than plucking. My arms are so weak though that I can’t pluck my own eyebrows anymore. I have to go get them waxed about once every 3 weeks. Okay, torture part one, Over.

IMG_1733Now on to torture part 2. img_17341.jpgThis one is not too awful bad.. Lol. Getting a pedicure has it’s good parts. Soaking my feet in the nice warm water helps take out some of the toxins in my system and just plain feels good. However, my feet are very callused and also I get the one that comes with the sea salt scrub so that isn’t pleasant. Overall, the pedicure is one of the better parts of the day with minor torture thrown in. I got my nails painted my favorite shade of blue and she painted little palm trees on the big toes in honor of going to the beach. I have never done that before.

trigger-point-therapy-nycSo then I rush across town to the massage therapist. Now she is not just any old massage therapist. She is a mean massage therapist. Lol. Just kidding. She practices Myofascial Release Therapy which she learned from the guy who came up with the treatment. jkgghjkfhgjdghsfBasically, it incorporates massage and PT and she digs right into those trigger points to get them to gthjghjkljklhjkfrelease and relieve the pain. At least that is what it feels like to a layman. I have a few pics I am going to post but if you have140527_legmassage fibromyalgia I definitely recommend you look into it. I cannot afford to go to her as much as I would like but I can always tell a difference after she works on me. It hurts like heck. Sometimes I groan or ouch or make a little squealy sound, but I really try to not be a baby about it because it really helps. It kills me though when people are like acting all jealous about me going to get a massage that is torture for me and I try to explain but they are just like oh yeah, sure…..

After all of that I finally get to go to Target (Heaven on Earth), and I really just want to go home and go to bed. I know that if I do I will have to come back out another day and do it and I already know I will be laid up tomorrow. So off I go to Target. I use the zippy cart and barely make it through.yhtyghrfg I finally get out of there and home. I have been going from 9 am til 4 pm. I lay down immediately and sleep til 9:30. I only get up then to use the bathroom when my kids wake me up to make sure I am ok. Lol Before I got sick I could have done that and come home feeling refreshed and happy and ready to tackle anything. But now I just feel like I have been hit by a truck and I could sleep for a week. I definitely overdid it. Such is life with Fibro. It really sucks. Tell me about your experiences. Do you feel like some of the things you used to love before are now torture? Can you handle massages? How do you handle it when you have to put in a full day? How do you prepare for a long trip? Leave me a comment guys. I would love to hear from you!!

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We CAN do this!!

We WILL do this!!

Now GO!!

Gentle Hugs,

Jill