I wore my slippers to the Doctor. Yep, I did it. The receptionist commented. The nurse looked at me funny but knew better. The Dr laughed. They know me so well. I have been at this office 20 years. It was a rough morning. They are lucky I showered and put on clothes… but the shoes….. nope. Don’t need them. Too tight. Or too rough. That one is scratchy. Those are hard. Slippers… just right. 😋
Have you ever been really sick? So sick you cannot get dressed but you have to go to the Doctor to get medicine to get better? Maybe the flu? Or Pneumonia? Well, I had neither of those. It was just a typical Wednesday for me. I have Fibromyalgia. That means I am always in pain. Maybe my hips hurt, or my back, or I just kind of ache all over. Or I can have excruciating pain. I never know what to expect and it can change with no warning. There is rarely ever rhyme or reason to it. I do know to expect a lot of pain after any kind of activity. I have to be careful not to overdo it. My good days hover near a 3-4 on your pain scale. Yesterday, I was at a 6-7 by the time I reached the Dr.
With Fibromyalgia, you may sometimes experience very sensitive skin. Even the light touch of a feather can cause pain. You may feel like your nerves are raw all over your body. Rough clothes or bedding are torture. I was experiencing both of these, plus my feet were a bit swollen. Hence the slippers.
Another very debilitating symptom of fibromyalgia is the fatigue. I have a limited amount of energy these days and it is way less than I had before getting sick. I had showered for the appointment. That, in itself, is the same as a 3-mile hike used to be, as far as the energy it uses for me. So by the time I was ready to go I was already exhausted and needed a nap. So…pain, raw nerves, sensitive skin, exhaustion….what am I forgetting?
Hmmm… oh yeah…. depression and anxiety. I was anxious about the appointment. I was happy to be getting out of the house and seeing people. However, instead of going to get a wonder drug which would have me feeling better in a few days as you do when you have the flu, I was probably going to be taken off a medicine that may or may not be helping with my pain. We believe it is contributing to my weight gain and severe memory and cognitive issues. I am going to slowly lower my dose and see if my pain worsens. Not an easy task since out of the last 7 weeks I have had roughly 5.5 weeks of severe pain. So I was depressed to be facing what may very well be a lot of pain in the near future.
My wonderful Dr (no, he really is) also wants me to do a repeat MRI of my brain (fun), see my neurologist asap (more fun), and required at least 3 pints of blood (super fun). He did gift me with a lovely parting gift of prescriptions for a shower chair and grab bars because I have been falling so much. This was the most fun I have had all week. Seriously folks. I really need/want that shower chair.
So…what is the moral of the story? I don’t know… Lol. I guess I would like everyone to know that living with a chronic illness like Fibromyalgia is harder than you can imagine. Those of us with a chronic illness call ourselves Warriors for a reason. I listed several of the bigger symptoms above but there are hundreds of symptoms and other conditions that go with chronic illnesses. So say a prayer for us please and next time you see someone out in their slippers or pajamas… stop and consider that they may not be lazy or whatever. Maybe their shoes hurt this morning…….