Ugh, I hate it. It’s a never ending cycle. You feel good (read.. pain is somewhat bearable). You get up. You go out. You live life. You come home. You feel like you are going to die because the pain is so bad. Is it any wonder that people with fibromyalgia suffer from such debilitating depression and anxiety? How do you decide? Stay in your prison in hopes of keeping the pain at a minimum for a few hours or actually got out and try to enjoy yourself while experiencing a high level of pain or anticipating the high level of pain to come? It makes me think of one of my favorite quotes, “I’d rather have 30 minutes of wonderful than a lifetime of nothing special.” Julia Roberts as Shelby in Steel Magnolias. I think most Spoonies agree with me. We miss out on SOOO much that if we get any time we feel halfway decent we are going to try and pack as much wonderful in as we can. Don’t let that make you doubt us when we are laying on the couch or bed later. Don’t think… “Well yesterday you were doing such and such so you must not be feeling TOO bad.” Believe me… if yesterday we were doing anything… then today we are feeling bad. That’s how it works. Please don’t begrudge us those moments of wonderful if we choose to use our 30 minutes this week to do something fun instead of something routine like laundry. If YOU only got 30 minutes out of bed a week would you want to spend it on laundry? I think not. And Spoonies.. don’t feel guilty if you spend your 30 minutes doing something fun. Something fulfilling. Something wonderful. It is good for your mental health. It is good for your depression. Your mood. Your heart and soul. Now if you absolutely LOVE laundry. Go for it. Lol, otherwise….play with the kids, go shopping, go kayaking, go do what your heart desires. Just go.
We CAN do this!!
We WILL do this!!